CLC number: R19
On-line Access: 2024-08-27
Received: 2023-10-17
Revision Accepted: 2024-05-08
Crosschecked: 0000-00-00
Cited: 43
Clicked: 6737
CHEN Tian-hui, LI Lu, KOCHEN Michael M.. A systematic review: How to choose appropriate health-related quality of life (HRQOL) measures in routine general practice?[J]. Journal of Zhejiang University Science B, 2005, 6(9): 936-940.
@article{title="A systematic review: How to choose appropriate health-related quality of life (HRQOL) measures in routine general practice?",
author="CHEN Tian-hui, LI Lu, KOCHEN Michael M.",
journal="Journal of Zhejiang University Science B",
volume="6",
number="9",
pages="936-940",
year="2005",
publisher="Zhejiang University Press & Springer",
doi="10.1631/jzus.2005.B0936"
}
%0 Journal Article
%T A systematic review: How to choose appropriate health-related quality of life (HRQOL) measures in routine general practice?
%A CHEN Tian-hui
%A LI Lu
%A KOCHEN Michael M.
%J Journal of Zhejiang University SCIENCE B
%V 6
%N 9
%P 936-940
%@ 1673-1581
%D 2005
%I Zhejiang University Press & Springer
%DOI 10.1631/jzus.2005.B0936
TY - JOUR
T1 - A systematic review: How to choose appropriate health-related quality of life (HRQOL) measures in routine general practice?
A1 - CHEN Tian-hui
A1 - LI Lu
A1 - KOCHEN Michael M.
J0 - Journal of Zhejiang University Science B
VL - 6
IS - 9
SP - 936
EP - 940
%@ 1673-1581
Y1 - 2005
PB - Zhejiang University Press & Springer
ER -
DOI - 10.1631/jzus.2005.B0936
Abstract: In more recent times, health-related quality of life (HRQOL) measurements have formed an important part of assessing the quality of routine care in general practice. For a measure to have clinical usefulness it must not only be valid, appropriate, reliable, responsive, and capable of being interpreted, but it must also be simple, fast to complete, easy to score, and provide useful clinical data. The Two-step method of choosing appropriate measures is introduced. Then through comparison of generic instruments with disease-specific instruments, we can conclude that sometimes a combination of generic and disease-specific HRQOL measures may be more appropriate for monitoring changes in a patient’s health status due to an intervention.
[1] Alonso, J., Ferrer, M., Gandek, B., Ware, J.E., Aaronson, N.K., Mosconi, P., Rasmussen, N.K., Bullinger, M., Fukuhara, S., Kaasa, S., et al., 2004. Health-related quality of life associated with chronic conditions in eight countries: Results from the International Quality of Life Assessment (IQOLA) Project. Quality of Life Research, 13:283-298.
[2] Asadi-Lari, M., Tamburini, M., Gray, D., 2004. Patients needs, satisfaction and health related quality of life: Towards a comprehensive model. Health and Quality of Life Outcome, 2:32.
[3] Bentsen, B.G., Natvig, B., Winnem, M., 1999. Questions you didn’t ask? COOP/WONCA charts in clinical work and research. Family Practice, 16:190-195.
[4] Bergner, M., Bobbitt, R.A., Kressel, S., Pollard, W.E., Gilson, B.S., Morris, J.R., 1976. The sickness impact profile: Conceptual formulation and methodology for the development of a health status measure. International Journal of Health Service, 6:393-415.
[5] Bowden, A., Foy-Rushby, J.A., 2003. A systematic and critical review of the process of translation and adaptation of generic health-related quality of life measures in Africa, Asia, Eastern Europe, the Middle East, South America. Soc. Sci. Med., 57:1289-1306.
[6] Bullinger, M., Alonso, J., Apolone, G., Leplège, A., Sullivan, M., Wood-Dauphinee, S., Gandek, B., Wagner, A., Aaronson, N., Bech, P., et al., 1998. Translating health status questionnaires and evaluating their quality: The IQOLA project approach. J. Clin. Epidemiol., 51:913-923.
[7] Campbell, S.M., Hann, M., Hacker, J., Burns, C., Oliver, D., Thaper, A., Mead, N., Safran, D.G., Roland, M.O., 2001. Identifying predictors of high quality care in English general practice: Observational study. BMJ, 323:784-790.
[8] Gandek, B., Ware, J.E., 1998. Methods for validating and norming translations of health status questionnaires: The IQOLA project approach. J. Clin. Epidemiol., 51:953-959.
[9] Greenfield, S., Nelson, E.C., 1992. Recent developments and future issues in the use of health status assessment measures in clinical settings. Med. Care, 30(Suppl): MS23-41.
[10] Guyatt, G., Feenz, D., Patrick, D., 1993. Measuring health related quality of life. Ann. Intern. Med., 118:622-629.
[11] Higginson, I.J., Carr, A.J., 2001. Measuring the quality of life: Using quality of life measures in the clinical setting. BMJ, 322:1297-1300.
[12] Janse, A.J, Gemke, R.J.B.J., Uiterwaal, C.S.P.M., van der Tweel, I., Kimpen, J.L.L., Sinnema, G., 2004. Quality of life: Patients and doctors don’t always agree: A meta analysis. J. Clin. Epidemiol., 57:653-661.
[13] Keller, S.D., Ware, J.E., Bentler, P.M., Aaronson, N.K., Alonso, J., Apolone, G., Bjorner, J.B., Brazier, J., Bullinger, M., Kaasa, S., et al., 1998. Use of structural equation modeling to test the construct validity of the SF-36 health survey in ten countries: Results from the IQOLA Project. J. Clin. Epidemiol., 51:1179-1188.
[14] Lam, C.L.K., 1997. What is health-related quality of life (HRQOL)? Hong Kong Practitioner, 19:505-506.
[15] Lam, C.L.K., Lauder, I.J., 2000. The impact of chronic diseases on the health-related quality of life (HRQOL) of Chinese patients in primary care. Fam. Pract., 17:159-166.
[16] Li, L., Jiang, M.M., 2002. Tests of reliability, validity and responsiveness of the SF-36 scales in hemodialysis patients. Chin. Med. J., 115:995-997.
[17] Li, L., Wang, H.M., Shen, Y., 2002. Development and psychometric tests of a Chinese version of the SF-36 health survey scales. Chinese Journal of Preventive Medicine, 36:109-113 (in Chinese).
[18] Li, L., Wang, H.M., Shen, Y., 2003. Chinese SF-36 health survey: Translation, cultural adaptation, validation, and normalisation. J. Epidemiol. Community Health, 57:259-263.
[19] Lohr, K.N., 1988. Outcome measurement: Concepts and questions. Inquiry, 25:37-50.
[20] Meadows, K.A., Rogers, D., Greene, T., 1998. Attitudes to the use of health outcome questionnaires in the routine care of patients with diabetes: A survey of general practitioners and practice nurses. British Journal of General Practice, 48:1555-1559.
[21] Saltman, D.C., Myers, L., Kendrick, J., Fisher, G.C., 1998. Standardising health outcome measurement in general practice. Australian Family Physician, 27(Suppl 2):89-93.
[22] Tseng, H.M., Lu, J.F., Gandek, B., 2003. Cultural issues in using the SF-36 health survey in Asia: Results from Taiwan. Health and Quality of Life Outcomes, 1:72.
[23] van Manen, J.G., Bindels, P.J.E., Dekker, F.W., Bottema, B.J.A.M., van der Zee, J.S., Ijzermans, C.J., Schadé, E., 2003. The fluence of COPD on health-related quality of life independent of the influence of comorbidity. J. Clin. Epidemiol., 56:1177-1184.
[24] van Weel, C., Koenig-Zahn, C., Touw-Otten, F.W.M.M., van Duijn, N.P., Meyboom-de Jong, B., 1995. Measuring Functional Health Status with the COOP/WONCA Charts: A Manual. Northern Center of Health Care Research, Groningen, Netherlands.
[25] Wagner, E.H., 2001. Meeting the needs of chronically ill people. BMJ, 323:945-946.
[26] Wang, H.M., 2004. Cross Cultural Epidemiology and Health Related Quality of Life Measurement among Primary Care Patients with Chronic Diseases. Ph.D. Thesis, Zhejiang University, China (in Chinese).
[27] Ware, J.E., Sherbourne, C.D., 1992. The MOS 36-Item Short Form Health Survey (SF-36) 1: Conceptual framework and item selection. Med. Care, 30:473-483.
[28] Ware, J.E., Gandek, B., 1998. Overview of the SF-36 health survey and the international quality of life assessment (IQOLA) project. J. Clin. Epidemiol., 51:903-912.
[29] Ware, J.E., Kosinski, M., Gandek, B., Aaronson, N.K., Apolone, G., Bech, P., Brazier, J., Bullinger, M., Kaasa, S., Leplège, A., et al., 1998. The factor structure of the SF-36® health survey in 10 countries: Results from the International Quality of Life Assessment (IQOLA) Project. J. Clin. Epidemiol., 51:1159-1165.
[30] Wensing, M., Grol, R., Asberg, J., van Montfort, P., van Weel, C., Felling, A., 1997. Does the health status of chronically ill patients predict their judgments of the quality of general practice care? Quality of Life Research, 6:293-299.
[31] WHO (World Health Organization), 1948. WHO Constitution. WHO, Geneva.
[32] Wilson, I.B., Cleary, P.D., 1995. Linking clinical variables with health related quality of life. JAMA, 273:59-65.
Open peer comments: Debate/Discuss/Question/Opinion
<1>
qwe@qe<datski@hotmail.com>
2011-02-11 08:03:03
thanks
abdolah@phd student<khorami.abdolah@gmail.com>
2010-12-26 17:14:30
I need the full text of paper above"A systematic review: How to choose appropriate health-related quality of life (HRQOL) measures in routine general practice?